(The Gist of PIB) Thalassemia Screening and Counselling Centre

(THE GIST OF PIB) Thalassemia Screening and Counselling Centre

Union Minister of Health and Family Welfare inaugurated a Thalassemia Screening and Counselling Centre at Indian Red Cross Society’s National Headquarters (IRCS NHQ) Blood Bank.

About:

Haemoglobinopathies, such as Thalassemia and sickle cell disease are inherited disorders of red blood cells and are preventable.
In India, Thalassemia Major (TM) and the severe form of Thalassemia Intermedia (TI) constitute the major burden of disease.
These Thalassemia syndromes are caused by inheritance of abnormal (beta) Thalassemia genes from both parents or abnormal beta-Thalassemia gene from one parent and abnormal variant haemoglobin gene (HbE, HbD) from the other parent.
India has the largest number of children with Thalassemia major in the world, about 1 to 1.5 lakhs, and about 10,000 -15,000 children having Thalassemia major are born every year.
The only cure available for such children is bone marrow transplantation (BMT). However, BMT is difficult and not affordable by the parents of all these children.
Therefore, the mainstay of treatment is repeated blood transfusions, followed by regular iron chelation therapy to remove the excessive iron overload, consequent to the multiple blood transfusions.